sorry to be picky, but the world health organisation classifies m.e. /cfs as a neurological disorder and what with all the prejudice and controversy that people have about it, i think it should be correctly placed in theat section.
RE: cfs is a neurological disorder
Different people and organisatiosn classify conditions in different ways. Just because the WHO says it's a neurological conditions, that does not mean that it is correct. I think they would be the first to admit that they actually know very littled about M.E / CFS.
Donna.xx.
RE: cfs is a neurological disorder
Hi
I agree with Donna,
all too often it is convenient to give something a little box to fit in and give it a posh name, but we know too little and should be open minded when it comes to helping others or ourselves for that matter.
Over generalisation istoo common in the world of heath and medicine.
I am not assuming for a minute that some people do not have serious conditions that are debilitating, but we sholud look to make quality of life as good as is acheivable by whatever means are available to us.
Gaz
RE: cfs is a neurological disorder
Different people and organisatiosn classify conditions in different ways. Just because the WHO says it's a neurological conditions, that does not mean that it is correct. I think they would be the first to admit that they actually know very littled about M.E / CFS.
Couldn't have put it better. HP generally is about the Complementary or Holistic view, which means that is the view that to separate out any individual system and say that the problem only lies there is a nonsense. It's more a case of all systems are interconnected and interdependant.
At best, based on the evidence that I'm aware of, one would have to say thatME/CFS is primarily an immune problem that impacts the neurological system ( brain & nervous system), as it does all the other systems. Some systems are easier to monitor than others, so there's likely to more objective findings in those areas.
I'm guessing that Kellyis referring to the Thread at the top of this Forum - [link= http://www.healthypages.net/forum/tm.asp?m=67802 ]http://www.healthypages.net/forum/tm.asp?m=67802[/link]
If it's any consulation, then I wrote it a while back and although I'm sticking with the general premise, I have gained much insight and will be asking to make some additions to the Thread.
Andrew.
RE: cfs is a neurological disorder
WOT REALLY gets me is when ignorant people say.. oh i had that just because they had flu for a few weeks that was hard to throw off... what on earth do i say to that?? grrrr
RE: cfs is a neurological disorder
Hi all,
I have Fibromyalgia and CFS/ME. I am really struggling with people thinking that its all in 'your head'
I have just had report back from pain clinic that says i have Psycho social issues along with FMS nothing about CFS/ME.
The impression I got from the doc is that CFS/ME for me may be psychological due to the seperation from my ex husband over 2 years ago. even though i was only diagnosed with it this year. I told him I thought that he was wrong and that was the end of that subject. but he did agree with me having FMS.
The outcome from this was a course of CBT treatment lasting 8 weeks.
I dont think anyone including doctors can really appreciatehow these conditions affeect people.We know how we feel as we are the ones living with it. Docs can't find a solid reason why people get it and haven't a cure either.
I know I didnt fully appreciate these illnesses (hadn't even heard of FMS)until i was diagnosed wih FMS nearly 5 years ago and recently with CFS/ME.
Your life changes and it takes a great deal to try and change with it. I have gone through many phases during this including the fact that i may be going mad and my daughters thinkin I had alzehmirs (sorry Spelling) which wasn't nice.
So people please try to be a bit sensitive when you commenton subjects which you may know little about.
Sorry this is a bit jumbled but i have to type what im thinking otherwise i forget.
Take care
Tracie xx
RE: cfs is a neurological disorder
Hi,
as a nutritional therapist I have worked with people with CFS/ME and it can be a complicated issue. It is definitely not something imagined and certainly debilitating and adds further to stress. There are various aspects to investigate and stress is one of them. Stress/emotional traumacan lead to adrenal exhaustion and hence chronic fatigue. But other areas to investigate include heavy metal toxicity, parasites/candida (which can be partly to the gut's immune system being compromised by stress) and neurological and cellular damage.
It may be worth your while to seek out a nutritional therapist to help you.
Best regards,
RE: cfs is a neurological disorder
Do you know what - alternative and complemantary therapists saying that they 'know' what causes M.E/CFS and that they 'know' how to make it better - really infuriates me. For one thing some people have it very badly - so the person who wrote above that you were working as an osteopath whilst suffering from this problem - I think you have a completely different illness to me and, personally, I have seen nutritionists, osteopaths, chiropractors, kinesiologists, reflexologists, homeopaths - the list could go on - I have found some of these things a little bit useful but have never been able to afford continuing with them and they never really helped me to significanltly improve. The first few years I was ill I was in a dark room, unable to sit upright. I couldn't tolerate and sound, light, anyone touching me. I was dizzy to the point of the room spinning round 24 hours a day, I had migraines, I vomited, every part of my body hurt and I could not sleep AT ALL - not even for 10 minutes. So the suggestion to 'keep moving' is really quite ridiculous to me. Gradually I have improved (obviously - I can now sit at a computer and type...) and as I have done so I have tried the above therapies and I have tried really hard to do things to help myself and I have tried to have a positve attitude and eating well (and I don't think I do have any allergies) and in the end I have given up. I now smoke and drink and feel very unwell, I sleep when I pass out. This change in attitudehappened as a result of losing the love of my life to this illness - he couldn't cope with it anymore and who can blame him. I wanted him to find someone else - he desrves to have a life even if I can't. Shit! Most people just have no idea and you know what - it's a terrible thing to say - but I would rather have had cancer. At least people believe you are likely to be feeling ill and that you are in fact ill. That doubt on the part of so many destroys my heart and it fuels my rage. And do you know what is still the hardest thing of all? To erradicate all hope and give up completely. Somedays I am pretty sure that it is all just a terrible nightnmare and one day I will just wake up and I will be back sitting at my desk at my old job (which I loved), living in my old home with my love - oh god I miss him so much. Every night I go to bed thinking that maybe tomorrow will be the day when things improve. Every night I lay in bed - breathing into my paain and felling things losen a bit and picture all of my muscles relaxing and I hope and I hope and I wish and I wish and every morning for a few minutes before I am fully awake I feel that I have woken up - that maybe I am back at 27 again enjoying my life. And within a few minutes that is ripped out from heart and my head and I am still here and I hate it.
Sorry.
Joss
xxx