my partner has just been diagnosed with P.K.D some of his family have it too. I wondered if there is anyone who knows more about it and how it has affected there lives, will he end up having a kidney transplant eventually
RE: polycystic kidney disease
Hi,
I have PKD which was diagnosed a few years ago. It can be genetic & it sounds like that's what your friend has. I go to Guy's for a check up every 6 months. To check on the creatin level in the urine. I do lead a very healthy life apart from a bit of tiredness (you do become a bit anemic ) The cysts can also be in the other ogans like the liver, so its not too clever to drink much alcahol as you get really bad hangovers. If you are under a hospital ,they should monitor you & if you go into renal failure, you go on dialysis & then a transplant. There is no cure. Thekidneys are helped by keeping the blood pressure at a normal level so youre friend may be put on BP tablets. You need to avoid infections as they could affect the kidneys & you are entitled to a flu & pneumonia jab from your Dr. Unfortunately the kidney's & liver swell up which can be uncomfortable & gives you a swollen stomach. I go to a gym & do excersises to keep the stomach muscles strong to prevent a pop belly as much as possible!Also exercise I have been told is good for maintaining a healthy liver.
RE: polycystic kidney disease
I had a large kidney stone removed 16 yrs ago and was told I had medullary sponge kidney (similiar thing) and was also told I would get repeated kidney stones.I was told to go on a low oxalate diet and cut down red meat. I went veggie that year (now vegan) and have never had another kidney stone since (touch wood!!)