Hi guys, just been told i have Lipoedema at my doctors, he said no cure ,very painfull and treatment dosnt work,he also said i cant wear the tight stockings or bandages due to having DVTs in both legs,on Warfarin for life,would like to know moor abt Lipoedema if any one can help would be greatfull love Bubblesnow x:rolleyes:
Hi Bubblesnow and welcome,
I don't know anything about it myself, but thought I'd at least welcome you to Healthypages.
All Love and Reiki Hugs
Hi guys, just been told i have Lipoedema at my doctors, he said no cure ,very painfull and treatment dosnt work,he also said i cant wear the tight stockings or bandages due to having DVTs in both legs,on Warfarin for life,would like to know moor abt Lipoedema if any one can help would be greatfull love Bubblesnow x:rolleyes:
Hi there Bubblesnow :wave: - Welcome to Healthypages
I am sorry to hear you are suffering this painful condition and the doctor seems unable to give you much help. I have no doubt people will offer suggestions here, and I expect there are therapies that might make a difference. There is a [url]Lymphoedema society[/url], and which can be very supportive for those struggling with the problem.
From my perspective I would look carefully at what you eat - not to lose weight but to avoid those foods which may be causing problems with the genetic expression in your body. This is a new science called for example.
I would try and find a Doctor of [url]Functional Medicine[/url] who will look at all your symptoms and give you a support programme which will help your body to cope better with the problems.
Wishing you all the best
Hi Bubblesnow,
I'm very sorry to hear about your diagnosis, but please don't be too disheartened. While the condition may not be curable, it can be prevented from getting any worse and the pain can be minimised.
I'm the founder and Chair of a new organisation called Lipoedema UK - we're in the process of setting up a Website and applying for charitable status. We've set up because of the lack of information about this condition out there. We'll be at [url]Lipoedema | Welcome to the Lipoedema website[/url] are are already on FB at [url]Lipoedema UK | Facebook[/url] and Twitter @LipoedemaUK. We're made up of volunteers who have Lipoedema (such as myself) and medics from St George's hospital in London, who are leading the way on Lipoedema in this country. Happy to chat to you offline if you like, you can email us at info@lipoedema.co.uk.
Best wishes,
Suzanne
Hello Bubblesnow,
This may help
[url]Lipedema Support Group | Facebook[/url]
P
Manual lymphatic drainage will help too - especially with your medical history (no bandaging/compression). For therapists check out [url]Therapists - MLD UK[/url]