Thanks for the links and info
She is now being referred to the hospital - she had been complianing of her heart hurting, but we were told by one doc not to worry.
Today her hands and feet were soo cold! I managed to get her an appointment and we went through everything again - she listened to her heart and she has a murmor! She was then checked again by another doctor who deals with cardiology and I have to pick up a letter tomorrow and arrange an appointment for her
Quite freaked out - could cope if it was me - but my children are a different matter!
Bluefloppy - what a lucky daughter to have a Mum who is persistent. Well done you for getting a provisional diagnosis and hopefully you will get a good referral and treatment or monitoring can be set in action for Isabelle.
You say you are going to be referred and I am sure it will be a worrying time for you. Can I make a few suggestions that I hope will help when you go for the appointment?
1) Do write a list of your questions and worries. If you don't want to sit and reel off questions - write down some key words that will remind you of the things that concern you or you don't know / understand.
2) If you don't understand what's said - ask them to repeat it or "put that in laymans language please" I know many specialists don't intend to baffle but they are concerned at establishing the diagnosis and treatment and sometimes the need to make it all clear gets unintentionally lost.
3) Say at the outset that you would like to take brief notes. If possible, take another friend or relative with you and then they can jot down points and leave you free to ask questions and listen.
4) Ask if its possible to have a summary of the letter that will be sent to the GP so that you are clear what has been said.
Having worked in hospitals for a fair few years in different areas, I know that if you are polite and friendly, no-one objects to the type of things suggested above. (Or if they do, then they are in the wrong job!) Unfortunately, anxiety and fear often makes people seem aggressive and confrontational - understandable really as they are out of their comfort zone and feeling threatened by events, but hospital staff are human too and don't respond as well when that happens, however good their intent.
Hope the pointers are helpful, I wish you and your daughter all the best. If I can be of further help, please feel free to pm me. I certainly won't know all the answers but I may well know someone who has or will have access to the information.
Take care
Celia
Hi there Bluefloppyhat
As scary as it is at least you have something definate to be working with now. Knowledge is a powerul thing and once you know what you are 'fighting' it gives you something to focus on. I agree with all that Celia has said above ( I have also worked in hospitals!) and as she has said, if you don't understand then ask again. Good luck. Continuing to send love and Reiki to you and your daughter.
Love and light
reikiangel
xxx
Hi Bluefloppy,
sending love,reiki and prayers to both you and your daughter.
Take very good care.
Love and light.x:hug: