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Pityriasis Rosea

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(@lemontart)
Posts: 5
Active Member
 

well the hr made it worse think must have got wrong sort as so many types of h&r these days but have got selsun shampoo now so will try with that


 
Posted : 29/06/2010 5:21 pm
(@mario-zagallo)
Posts: 4
New Member
 

Pityriasis Rosea- complete nuisance

Having no idea what this Pityriasis Rosea was, and having seen the spots spreading like wildfire on my body, I started thinking the worse, maybe some kind of skin cancer and googled and saw some pictures of Kaposi's Sarcoma, (linked to Aids) and they were similar to Pityriasis Rosea rashes, went straight to my GP asking for blood tests, dermatologist, you name it. The "funny" thing was my GP too had no idea of this and checked some pictures in his book only to come up with "Pityriasis Rosea has no available treatment, and goes away in 6 weeks".

As I was not going to stand idle as this thing was driving me nuts, and have been using Selsun and L'Oreal Anti-dandruff shampoo for over 10 days with no results, I decided to take matters in my own hand.
After a few researches in Google, I came across an info in a American Medical Journal, saying that Pityriasis Rosea is a form of Human Herpes Virus, and hot water makes it look worst as it flares up.

Having tried all kinds of anti-bacterial and anti-fungal stuff, went to Asda and found this Nextcare Hand sanitizing gel without fragrance or colouring, that kills Poliovirus, HIV-1, Herpes Virus, Influenza Virus H5N1, surrogate of SARS, Hepatitis B and C virus.

Same time found another hand gel ( The Health Defender) in one of this £1 shops, and it kills flu, salmonela, MRSA and Candida.
So I started spraying myself with the Health Defender in the morning and afternoon, and before bed with Nextcare (little bottle of 75ml in ASDA for around £3)after a warm/cold-ish shower using Wright's Coal Tar soap.(the orange one)
Surprise ,surprise 48 hours later all the spots im my body have dried completely and some of them that were looking bad have even healed.

It's shocking that in the year 2010, the medical brotherhood have no idea on how to deal with this.

Hope this can help some sufferers of this nuisance Pityriasis Rosea.


 
Posted : 02/07/2010 12:34 am
CarolineN
(@carolinen)
Posts: 4760
Famed Member
 

WOW! Mario - that's a fantastic result - and for such little cost too!!!

I've been following this thread, interested to find what might help this awful skin condition - and it seems like you have found an answer!

And yes, I too despair at modern medical practice where if you don't fit in one of their boxes, you're left to sort yourself out! By 'boxes' I mean either pharma or surgical. Mind you it has been shown that when Drs go on strike the death rate falls, so in many cases it might be better finding the answers oneself - then at least one can have a consultation with them armed with the information!!!


 
Posted : 02/07/2010 11:48 am
(@mario-zagallo)
Posts: 4
New Member
 

Some people have been told to use anti-dandruff shampoo, and quite a few have seen improvements with Head & Shoulders, while others like myself have been using Selsun.
The question here is; could it be that any anti-dandruff shampoo may work, or maybe (and I think that's the case) it is a specific one, due to the active ingredient.
This is a specific case(specific virus) and I have doubts any anti-dandruff will work.
I've tried Selsun for 2 weeks and couldn't see any improvement, while others reported improvements with Head & Shoulders.
If this is the case, the Head & Shoulders active ingredient is [url]Pyrithione zinc[/url] 1%, while Selsun active ingredient is Selenium Sulphide 2,5%.


 
Posted : 03/07/2010 1:07 pm
(@lemontart)
Posts: 5
Active Member
 

Having no idea what this Pityriasis Rosea was, and having seen the spots spreading like wildfire on my body, I started thinking the worse, maybe some kind of skin cancer and googled and saw some pictures of Kaposi's Sarcoma, (linked to Aids) and they were similar to Pityriasis Rosea rashes, went straight to my GP asking for blood tests, dermatologist, you name it. The "funny" thing was my GP too had no idea of this and checked some pictures in his book only to come up with "Pityriasis Rosea has no available treatment, and goes away in 6 weeks".

As I was not going to stand idle as this thing was driving me nuts, and have been using Selsun and L'Oreal Anti-dandruff shampoo for over 10 days with no results, I decided to take matters in my own hand.
After a few researches in Google, I came across an info in a American Medical Journal, saying that Pityriasis Rosea is a form of Human Herpes Virus, and hot water makes it look worst as it flares up.

Having tried all kinds of anti-bacterial and anti-fungal stuff, went to Asda and found this Nextcare Hand sanitizing gel without fragrance or colouring, that kills Poliovirus, HIV-1, Herpes Virus, Influenza Virus H5N1, surrogate of SARS, Hepatitis B and C virus.

Same time found another hand gel ( The Health Defender) in one of this £1 shops, and it kills flu, salmonela, MRSA and Candida.
So I started spraying myself with the Health Defender in the morning and afternoon, and before bed with Nextcare (little bottle of 75ml in ASDA for around £3)after a warm/cold-ish shower using Wright's Coal Tar soap.(the orange one)
Surprise ,surprise 48 hours later all the spots im my body have dried completely and some of them that were looking bad have even healed.

It's shocking that in the year 2010, the medical brotherhood have no idea on how to deal with this.

Hope this can help some sufferers of this nuisance Pityriasis Rosea.

I will try these now as the selsun worked on the smaller spots on torso but now got what can only be described as whelt like spots under breasts and at bikini line absolutely massive and hiddious.


 
Posted : 07/07/2010 1:05 pm
(@mario-zagallo)
Posts: 4
New Member
 

Went to see another GP to ask for a second opinion, and this time the diagnose was GUTTATE PSORIASIS. Nice!!
Basically it belongs to the same family as Pityriasis Rosea, both start with a sore throat, due to a bacteria called Staphylococcus aureus. It is frequently part of the skin flora found in the nose and on skin. About 20% of the human population are long-term carriers of S. aureus.
Again the GP reckons it will go away within 6 weeks, and no treatment is available.

I've been using Head & Shoulders for a week now, and I can say I have noticed a big improvement compared to Selsun. Same time I'm taking Vitamin E (400 iu.) 1 a day, and Vitamin C (1000 mg), 2x day, plus my normal all in one Multi-Vitamins and Minerals, and enjoying the weather with lots of sunbath. All spots have dried out completely and a few have started to disappear, so after shower a good full hand of Cocoa Butter Formula Lotion with Vit E (Palmer's) does the trick on the dry ones.
At least now I can go out without too much concern about this annoying condition that no one seems to know what to do or what to diagnose.
Wish you all the best


 
Posted : 10/07/2010 2:33 am
(@userdloat)
Posts: 1
New Member
 

Sunbeds definately have an effect, i took piriton for the itching, used calamine cream to keep the skin moisturised (and it's recommended for the condition anyway) and used sunbeds. As soon as i tried the sunbeds i saw an improvment, i've only had the conidtion 2 weeks and it's already cleared up on my neck, under my hair and chest and is clearing up on the stomach/back/arms/legs. It's the only thing out of all of the things i tried that made any change, it's like a miracle treatment after being told nothing cures it you have to wait up to 3 months for it to go. Give it a go! 🙂


 
Posted : 14/08/2010 8:59 pm
(@lauzm2004)
Posts: 2
New Member
 

Hi Guys

I have today been diagnosed with PR and to top it all off i am off to Florida on Saturday!! I too was told by the doc there was no remedies for it and that i had to ride it out. I have purchased Head and Shoulders to try that, the Coco Butter Cream by Palmers and I am also trying to get a hold of the hand sanitizing gel. I am going to hammer the sunbeds this week and my question is does anyone know if the lotions you can buy to stop yourself burning etc will irritate it? I am also worried about putting SPF on it on holiday? Does anyone know if these will irritate it cos i don't want to get burnt!!

Laura


 
Posted : 23/08/2010 4:16 pm
(@lauzm2004)
Posts: 2
New Member
 

Sunbeds definately have an effect, i took piriton for the itching, used calamine cream to keep the skin moisturised (and it's recommended for the condition anyway) and used sunbeds. As soon as i tried the sunbeds i saw an improvment, i've only had the conidtion 2 weeks and it's already cleared up on my neck, under my hair and chest and is clearing up on the stomach/back/arms/legs. It's the only thing out of all of the things i tried that made any change, it's like a miracle treatment after being told nothing cures it you have to wait up to 3 months for it to go. Give it a go! 🙂

Hi userdloat

Thanks for your suggestions, i am going to Florida on Sat and i am freaking out at the thought of having to wear a bikini with this thing!!

When you went for a sunbed, did you put cream on beforehand, you know the ones you buy before u go in that stop you from burning etc and help you tan quicker. I am wary of burning my skin on top of having this rash 🙁

Thanks in advance

Laura


 
Posted : 23/08/2010 4:22 pm
(@mario-zagallo)
Posts: 4
New Member
 

Laura my dear, don't worry too much about using bikini because of this nuisance. You need to give it a good dose of sunlight because the ultraviolet rays will kill of the bacteria, so just go out and enjoy your sunshine without any concern regarding the spots or what people think. Maybe just protect yourself with some sunscreen, that's it.
I know sometimes people don't feel confident enough to go out while having this skin condition, and even my friends have been teasing me while out on the swimming pool about me having "scabies", but who cares, there's more important things in life to worry about than a "passenger" spot in my skin for a few weeks.

Take care, relax and happy holiday


 
Posted : 26/08/2010 3:48 pm
(@claire77)
Posts: 1
New Member
 

hi all my 4yr old daughter has just been dignosed with pityriasis rosea and the doctors gave me some demercream for her and i would like to know what else can i use as she is 4yrs old and how she came to get it as my other two chldren has not had this before


 
Posted : 10/09/2010 5:39 pm
(@jenee)
Posts: 2
New Member
 

Pityriasis rosea in 4 year old

Claire,
My 4 year old daughter was disgnosed with this yesterday. After reading these threads I got pretty worried but already today (3rd day of rash) I see it's fading. The doc did prescribe Selsum but I don't know that I'll bother to open the bottle as long as it doesn't get any worse. He told me to apply all over affected area and leave on for 30 mins before washing off. Not sure for how many days supposed to do this.

As someone questioned already in this thread but wasn't answered, Selsun is for treating fungal infections whereas this Pityriasis rosae is thought to be viral.:confused: I wonder whether the folks who have already posted would have got better without the treatments they undertook. The doc did say it would spontaneously disappear after a few weeks.

The other thing I'm wondering is whether it really is Pityriasis. My daughter's other symptoms were sneezing, runny nose, puffy eyes, sore joints and itchy scalp. I'm wondering whether in fact she has had an allergic response to something. I've been giving her Pyriton syrup (antihistamine for kids) cos I had it in the cupboard and thought it would help if it was an allergy. Perhaps this is what's helping. Seems to ease the itch anyway.

The doc said he thought it looked like Pityriasis but he didn't sound certain and I don't think doctors can be certain without testing samples. He did say it seemed more common amongst folks with eczema (which my daughter has a wee bit of).

I hope I'm not being premature in thinking she's on the mend and hope that you similarly find it nothing to worry too much about with your wee one. Likewise my other daughter hasn't had it and the doc did say it wasn't infectious or contagious so the rest of the family should be ok. Look forward to hearing you experience.:)


 
Posted : 14/09/2010 10:00 am
(@michael2b)
Posts: 1
New Member
 

Hiya Everyone

A few weeks ago, my 12 year old son was diagnosed with [url]Pityriasis Rosea[/url]

Apparently it takes a number of weeks to clear up, does anyone know exactly how long? My son has had to stop doing PE at school for fear of other students seeing this rash and teasing him about it.

Love Angel x

Be sure to go to the doctor.
Check this pityriasis rosea official site too:
[url] Pityriasis rosea [/url]


 
Posted : 04/01/2011 9:36 pm
(@joeyjojo)
Posts: 1
New Member
 

Hi, I have had an on-going rash for 6 weeks that started by a few red spots on my chest then more and more appeared, Docs thought it was scabies, chicken pox, allergy to washing powder, allergy to shower gel, basically I did my own research and came accross this Pityriasis Rosea and the majority of the symptons. I have tried using head and shoulders as other people have suggested but this hasnt worked. I have used the sun bed about 3 times and seen a HUGE improvement, the spots arent as red, they are still visible but I feel a lot better. I have started to take Zinc & Vitamin C from Holland & Barratt so whether that is helping I am not sure. I am obsessed with this rash, never had anything like this before, really gets me down hopefully soon this will go. If anyone else has any tips let me know thanks x


 
Posted : 12/01/2011 7:19 pm
(@david-maldon)
Posts: 200
Estimable Member
 

Skin disorders can be notoriously difficult to diagnose accurately, especially in the early stages. As a lifelong psoriasis sufferer, I can understand your worry about this rash, but try to see a dermatologist for a correct diagnosis. You mention that your skin improves with sunbed use, which is often the way with psoriasis- many now think that there is a link to lack of vitamin D3 in winter months, normally processed in the skin on exposure to sunshine.

I was on an anti-cancer drug (methotrexate) for over 10 years to manage my skin, but I was a poor responder, so the consultant simply kept increasing the dose till eventually I ws on over 10 times the normal safe limit, with sickness, nausea and fatigue every week for 3 days. I got tired of living that way so stopped the drugs, but at the same time was self treating with acupuncture. My skin is not perfect, but nowhere near what it was like when using drug therapy, and my liver is much happier!

Incidently, red rashes are seen in chinese medicine as heat in the skin caused by blood stagnation. When I was in training I saw a technique called "Blood Cupping". I won't go into details, but I asked a collegue to try it on me, and its about the most painful thing I've experienced, apart from paying tax!:D

Try not to get obsessive, as that can lead.to stress that could make things worse. Oily fish, less alcohol and fags, a bit of sunshine, and some relaxation might just help. Best of luck.


 
Posted : 20/01/2011 8:44 am
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