Notifications
Clear all

Irritable bladder - help!


Miksweety
Posts: 3
Topic starter
(@miksweety)
New Member
Joined: 17 years ago


Hi there,

I am new to this forum and hope you can help me 'cause I'm getting really confused!

I had a urine infection last year and since then I've been plagued by symptoms - mainly soreness around my urethral opening and inside my urethra with a constant urge to go to the loo and pressure / aching on my bladder. My doctor (who is beyond useless) just dismissed it as another infection but tests have proven I'm all clear! I've had tests for STDs and again all clear. The only thing I can think of is irritable bladder syndrome. If this is the case, there are conflicting ideas on what foods are good / bad to eat - apparently cranberry is not good for this! It's making me really miserable and it's hindering my sex life and making me feel 'chilly' and ill! Any help / suggestions would be greatly appreciated.

Would a food sensitivity test help? I've tried cutting out caffeine, chocolate and sugar and works for a while but not long term. HELP!

Miksweety[:'(]

29 Replies
At One
Posts: 2738
(@at-one)
Famed Member
Joined: 18 years ago

RE: Irritable bladder - help!

Dear Miksweety

It would be wise to go back to the doc's to see if there is really no infection, because if you're feeling ill that would suggest that it has lingered and needs sorting out. There are homeopathis remedies for all manner of symptoms, I have used them successfully for cystitis, but best to get it checked and then make sure it's nipped in the bud by whatever means. I hope you're feeling better soon, sounds absolutely miserable [sm=hug.gif]. Reiki hugs coming to you.

Reply
Doogle
Posts: 1801
(@doogle)
Noble Member
Joined: 18 years ago

RE: Irritable bladder - help!

Hi Miksweety,

I know how you feel, I suffered from constant bladder and kidney infections for years. When you say 'chilly' do you mean you have shivers when you have this pain? If so, the cause might be little bladder stones. Is it possible to see a different doctor? A simple ultrasound would be able to rule it out.

I've heard that cranberry juice is good, but you have to drink a heck of a lot to get any real benefit. If you feel as though you've still got some infection, you could always try a bit of bicardonate soda in water and see if that helps (its tastes horrible but it should ease the pain).

Hope you get your answers and you feel better soon xx

Reply
Miksweety
Posts: 3
Topic starter
(@miksweety)
New Member
Joined: 17 years ago

RE: Irritable bladder - help!

WOW! Thanks for the amazingly quick replies - much appreciated!

It's so hard to 'diagnose' something when you cannot get to the root of it. At the moment it feels like an irritation rather than an infection - I've had 3 tests over the last couple of months and they're all clean. It's not thrush and it's not an STD. I'm trying to find a urologist to do a cystoscope so at least I can find out if my bladder is normal. Doctor's are so quick to dismiss symptoms as one thing or another, I wish they would listen more!

Many thanks,

Miksweety 🙂

Reply
joggyb
Posts: 56
(@joggyb)
Trusted Member
Joined: 17 years ago

RE: Irritable bladder - help!

Miksweety

It's possible that you may have interstitial cystitis - a non-bacterial, chronic form of cystitis. This would explain why your tests are coming back 'all clear'. GPs in the UK are horrendously underinformed about this, and will generally try to foist antibiotics on you even when there's little or no evidence of bacterial infection.

If you want more info, try the website of the Interstitial Cystitis Association - a huge US website which is a brilliant resource. I don't have the website address to hand, but if you type it into a search engine, it should come up.

Don't give up - and good luck!

Reply
Miksweety
Posts: 3
Topic starter
(@miksweety)
New Member
Joined: 17 years ago

RE: Irritable bladder - help!

Hi there,

Thanks so much for this info!

I thought it could be this too and have looked into it. Since posting on this forum I have been to a herbal practitioner friend of mine who seems to think I have candida - all the symptoms correspond and I never in a million years would have known my troubles were related to this. Apparently it's not thrush, it's something that lives in the gut and effects the whole digestive system. I'm currently trying a mixture of herbs and natural remedies so I'll keep you posted!

This whole experience has made me want to stay away from conventional doctors as they really don't take into account your complete history or even ask questions about symptoms. They seem so eager to just palm you off with pills. Never again!

Here's hoping this stuff works!

xx

Reply
Angelic
Posts: 367
(@angelic)
Reputable Member
Joined: 17 years ago

RE: Irritable bladder - help!

Hello

Oh dear I really do empathise with what you are going through. I had cystitis for years during my early teens to late teens and sometimes it would not disapear for weeks at a time. I was constantly on antibiotics and half the time like you there was no infection present. I was just one of those unlucky people who were prone to it. I was also told when seeing my odsteopath lol!! that I had candida she could tell by looking at my tongue. I know what you mean by the chills it almost feels like you have a temperature. It makes you feel really unwell. I had tried everything from the medicines to diets to cranberry juice which I drank by the gallon but after a while it didnt help it. I actually took alot of the enamel off my teeth un- awares by drinking the cranberry. Anyway I decided to try accupuncture. I visited one whilst I actually had the symptoms of a cystitis attack I felt so terrible and nothing would get rid of it. I was at the accupuncture place aprox an hour and hadnt drunk anything extra whilst there. I left and the symptoms had gone. I carried on going for a few months for treatment and never got it again. I havent had any accupuncture now for aprox over nine years and have never since had cystitis touch wood lol!!!! I swear by accupuncture it really helped me. And believe me I tried everything else.

Reply
leema_artist
Posts: 1
(@leema_artist)
New Member
Joined: 17 years ago

RE: Irritable bladder - help!

I have Irritable bladder syndrome. It comes and goes. I notice it kicks up whenever I drink caffeine drinks. I found out about a tea I think it is called Uva Ursi and it has something on the label of it that says "Pau de Arco". This tea is made from the bark of a tree. A lady at work has the same thing and she heard me complaining about it and she told me about it and brought some to work for me. I had to drink several cups of it and it took a day, but honestly, it made that pain in the bladder go away as well as that constant feeling of needing to empty your bladder. It was a miracle for me. I wish I had some right now because I'm up at the hospital and they don't have anything like that here! Hope this helps someone.

Reply
spinal music
Posts: 4018
(@spinal-music)
Famed Member
Joined: 17 years ago

RE: Irritable bladder - help!

Thanks, It might help my uncle.
Sharonx

Reply
Anahata
Posts: 1462
(@anahata)
Noble Member
Joined: 18 years ago

RE: Irritable bladder - help!

The type of candida that the herbalist mentioned is a close relative of the thrush variety.

If you do a Forum Search on Candida, you'll find myself and others have talked about it a lot. As for your current symptoms, then it's something that I had suffered from on & off for years and have now cleared the problem.

Give me a shout if you don't sort it with the herbalist and I'll point in right direction.

Andrew.

Reply
Goodboy
Posts: 12
(@goodboy)
Active Member
Joined: 17 years ago

RE: Irritable bladder - help!

Angelic

Where would be a good place to find a good accupuncturist?

Anish

Reply
Anahata
Posts: 1462
(@anahata)
Noble Member
Joined: 18 years ago

RE: Irritable bladder - help!

Try the British Association of Acupuncturists, assuming your in the UK, info not in your profile.

There's also the Chinese Medical Institute & Register -

I have a preference for 5 Element acupuncture, but don't know their practitioner professional body, so maybe a Google Search on 5 Element Acupuncture in your area may throw something up.

And.

Reply
Angelic
Posts: 367
(@angelic)
Reputable Member
Joined: 17 years ago

RE: Irritable bladder - help!

ORIGINAL: Goodboy

Angelic

Where would be a good place to find a good accupuncturist?

Anish

Hi not sure whereabouts you live but I went to a college of accupuncture where a student treats you they have almost completed their training so are able to practice on you and they have a fully qualified practioner in with them. It is very interesting and I actually found it really relaxing too. The college of accupuncture I went to is In EastGrinstead West Sussex!! Hope that helps or try the info above on Anahata's post.

Reply
Goodboy
Posts: 12
(@goodboy)
Active Member
Joined: 17 years ago

RE: Irritable bladder - help!

Anahata/Angelic

Thanks for your info...I cant quite figure out what is going on with my system around the bladder, prostate area...Do you think acupuncture is a possible solution?

Goodboy

Reply
Goodboy
Posts: 12
(@goodboy)
Active Member
Joined: 17 years ago

RE: Irritable bladder - help!

I live in London by the way

Reply
Goodboy
Posts: 12
(@goodboy)
Active Member
Joined: 17 years ago

RE: Irritable bladder - help!

do you know where I can get some of this tea?

Goodboy

Reply
sammyd
Posts: 14
(@sammyd)
Active Member
Joined: 17 years ago

RE: Irritable bladder - help!

Hi,
You may have found this already, but I thought I would put it on just in case

This charity is for overactive bladder, bacterial and interstitial cystitis.

The forum on there is the best there is, the people on there have had every problem, procedure and medication out there and im sad to say they know alot more than the doctors out there. This has been a complete godsend to me and I was at my wits end before I found it.

I hope it helps you.
xxxx

Reply
Angelic
Posts: 367
(@angelic)
Reputable Member
Joined: 17 years ago

RE: Irritable bladder - help!

Hi yes possibly it is so worth a try it cant hurt if it doesnt help you then try something else but it worked so well with me!!!!

Reply
Sleuth
Posts: 2
(@sleuth)
New Member
Joined: 16 years ago

RE: Irritable bladder - help!

Hi Miksweety,

Did you ever figure out what the problem was or how to fix it?

I think I have something similar... ugh... I'm miserable.

Thanks!

Reply
orangeblossom
Posts: 1302
(@orangeblossom)
Noble Member
Joined: 18 years ago

RE: Irritable bladder - help!

Hi sleuth

I have written about this elsewhere.

I have suffered on and off with cystitus for years and I was at my wits end last year with it as it was very severe.

If you think that is what you have, what worked for me was taking 2 X 200mg Vitamin E capsules a day until it went which wasn't that long actually.

Hope it works for you.

Reply
jujuz100
Posts: 2
(@jujuz100)
New Member
Joined: 16 years ago

RE: Irritable bladder - help!

IV had a horrendus xmas, miscarriage then urine infection, but the symptoms kept getting worse and now iv been diagnosed with irritable bladder. I know how horrible it is, and im terrified now that i'll always have it and it cause the miscarriage. iv beengiven a drug called detrusitol which seems to be calming the symptoms a bit, but it took several trips to doctors and a&e for it to be diagnosed.

Reply
tranceform
Posts: 210
(@tranceform)
Estimable Member
Joined: 16 years ago

RE: Irritable bladder - help!

It is possible that this may be your body's way of reparing your bladder - if I can be of help - or you want to know any more please do ask - either here or PM me - may I ask has there been any shocks or particular events that come to mind?

Reply
jeananne
Posts: 1
(@jeananne)
New Member
Joined: 12 years ago

irritable bladder syndrome

Hi Miksweety,

Did you ever figure out what the problem was or how to fix it?

I think I have something similar... ugh... I'm miserable.

Thanks!

Hello Sleith and Miksweety, I am jean and came to this site in the hope of meeting people who have this horrible syndrome. i have had it for two years now and it is quite awful. Miksweety, I have had my bladder inspected and it came back clear so the reason for the problem remains a mystery. i did see an article "drmyhill" on web saying could be caused by yeast allergy so going to see a dietician on Monday. I also take "Detrusitol" because it controls the detrus muscle and helps. I too keep getting tested for bacteria but that says no infection. Hope you may be feeeling better now both of you.

Reply
Lulu52
Posts: 20
(@lulu52)
Eminent Member
Joined: 12 years ago

Hi Jean, For the last year I have had troubles with my bladder also and its very uncomfortable. I have been to the doctor several times and no infection. This past Sunday (Mothers Day) I had to go to the Emergency Room with such pain in my bladder I thought I was dying. This week I will continue with a specialist. My symptoms are the urge to go a lot where it becomes painful, contractions of the bladder that flare up every fews weeks and seem to get worse with stress. I have cut down on caffeine (one cup of tea a day) but still no relief. I wonder whether this might have something to do with my age (52) and perhaps a lack of estrogen in that department. Anyway I hope to get some help soon and will let you know how that goes. Does this sound anything like what you are experiencing? I'm so sorry you are going through this. There has to be something that helps:):(

Reply
nadiag
Posts: 1
(@nadiag)
New Member
Joined: 12 years ago

Don't give up hope

Hiya,

I have had a form of cystitis where no infection was found and it got so bad I couldnt work and was absolutely miserable and the strain on my relationship was huge. There is nothing worse than being aware of your bladder all the time. Its so draining and stressful and this stress in turn makes it worse. AAGGHH!

I saw specialists who wanted to put me on all kind of drugs which was something I feel strongly against. In my mind my body's balance had gone a bit mad and I wanted to get it back rather than mask the symptoms with drugs.

I was lucky enough, I feel blessed really, to find a herbal medicalist called Deborah Grant based in London who has a lot of experience with cystitis and interstitial cystitis. She believes in finding the route cause of your problem and giving your body the help it needs to calm down and heal up. All the hours and hours of research I did helped me go there armed with a lot of knowledge and she knew everything I questioned her about. I went on her recommended diet which calmed the flare down and I take a combination of very strong herbs that complement each other and work in synergie to calm the inflammation, kill any low grade bacterial infection, and heal my bladder. She was also so kind as when I walked in there I was in a right pickle and it was lovely to feel understood and looked after.

I'm not better totally. I would say about 70% there and improving all the time. I can't really explain how horrific this condition is and anyone else suffering out there I really feel for you. Please get in touch if you are interested or want to know anything. I promised myself I would try to reach out and help others now that I'm getting better as I don't really know where I'd be if I hadn't found this treatment route. Whether its recurrent cystitis or interstitial cystitis you don't have to continue to suffer and worry.

Don't give up. Believe that your body can heal itself with the right help. Don't just throw remedies at it, you need a proper treatment plan to really fix the problem. Please do get in touch if you would like info or want to chat to someone who understands.

This is my medical herbalist's website if anyone would like to see -
.co.uk

Nadia x

Reply
scilla allen
Posts: 1
(@scilla-allen)
New Member
Joined: 12 years ago

Hello Sleith and Miksweety, I am jean and came to this site in the hope of meeting people who have this horrible syndrome. i have had it for two years now and it is quite awful. Miksweety, I have had my bladder inspected and it came back clear so the reason for the problem remains a mystery. i did see an article "drmyhill" on web saying could be caused by yeast allergy so going to see a dietician on Monday. I also take "Detrusitol" because it controls the detrus muscle and helps. I too keep getting tested for bacteria but that says no infection. Hope you may be feeeling better now both of you.

I've had cysititis a few times in my life, but this year i had it about 6 times, one after another. i believe illnesses have an emotional or mental cause, and in Louise Hay's book she likens cystitis to"the pissed of" illness, which i certainly was then, due to a family situation. i looked on the internet and herbal books for help, and i now make a bre every day combining juniper berries, bearberry, yarrow, coltsfoot, cornsilk (most important) in various combinations, and i haven't had any more attacks since spring. fingers (and legs) crossed!

Reply
dublingirl
Posts: 1
(@dublingirl)
New Member
Joined: 11 years ago

bladder problems

hi for the the pass 5years i have had problems with my bladder i have tried everything all drinks with no caffine in this helps alittle I have had the camera in my bladder 3 times just to be told that its very bad cystitis and was advised to take bicarbonate soda or potassium citrate mixture this was not much good this is getting me down when i go out anywhere i am up and down all the time to the toilet everywhere i go i am looking for the toilet sometimes i will not drink all day at work because of going to the toilet all the time at night time i get up 3 or 4times any advice welcome 😮

Reply
peterp1HH
Posts: 1
(@peterp1hh)
New Member
Joined: 14 years ago

Hi All,

My daughter suffered the same problem for for a good few years. The doctor told us there was no infection and that children sometimes suffer from these things. It got so bad that for three years I had been called in by various teachers saying that she was disrupting the class needing the toilet so much, so at my wits end I took her to my osteopath and was cured with 2 sessions. The preoblem was that her pelvis was twisted and pushing on her bladder. We have had no problems since except a couple of month ago took her straight, she popped her pelvis back and it cleared up straight away.

So maybe osteopathy is something to try, its all nature so what do you have to lose, could just be the answer for you to.

Reply
CarolineN
Posts: 4760
(@carolinen)
Famed Member
Joined: 13 years ago

Hi All,

My daughter suffered the same problem for for a good few years. The doctor told us there was no infection and that children sometimes suffer from these things. It got so bad that for three years I had been called in by various teachers saying that she was disrupting the class needing the toilet so much, so at my wits end I took her to my osteopath and was cured with 2 sessions. The preoblem was that her pelvis was twisted and pushing on her bladder. We have had no problems since except a couple of month ago took her straight, she popped her pelvis back and it cleared up straight away.

So maybe osteopathy is something to try, its all nature so what do you have to lose, could just be the answer for you to.

That's really interesting. So glad you have found the answer with your daughter's irritable bladder 🙂 - not an easy thing to cope with.

Reply
bladderhell
Posts: 1
(@bladderhell)
New Member
Joined: 9 years ago

I don't know what to do

I am a 30 year old female who has struggled with this since the age of 14, when I had chronic bladder infections, or so we thought. Did the horrific catheter thing at 14, tried bio feed back, and learned to live with it. When I was 22 or 23 I was diagnosed with internal cystitis. I finally had a bit of an understanding of what was going on. I was prescribed Elmiron (sp) but it was 300 dollars a prescription and I couldn't afford it b/c I was in college. I found that Urinary Tract pills that turn urine orange helped A LOT. I thought I had finally found my cure. Every time a flare up came about they would instantly give me relief.

Well fast forward a few years and after a major surgery (not related) I got a hold of vicodin my miracle little pill. One of those and the pain goes away. I would say in the past 2.5 years it has gone to a full blown addiction. I hesitate to use the word 'addiction' b/c I do not do these for fun or a high. I'd rather be a normal female and not have excruciating pain 24/7. And the orange pills from the pharmacy no longer work. Most recently I have used something stronger than vicodin to take the excruciating pain away.I don't know but I literally feel like my bladder is on fire when I don't take a pain killer. I've tried diet, no caffeine, no alcohol. Nothing works, and I'm feeling like this is going to literally be for the rest of my life.:(

Reply
Share: