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motor neurone disease

 
Neurological Problems
Last Post by Anne Mary 8 years ago
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Anne Mary
 Anne Mary
(@anne-mary)
Posts: 405
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I have just been diagnosed with motor neurone disease, or ALS. Does anyone have experience with this? I can only find very old threads. xA


 
Posted : 19/03/2019 11:51 am
 Lynora
(@jabba-the-hut)
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I'm sorry to hear this Anne Mary. Have you received any support or guidance about where to get information from your consultant?


 
Posted : 19/03/2019 11:55 am
Anne Mary
 Anne Mary
(@anne-mary)
Posts: 405
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I'm sorry to hear this Anne Mary. Have you received any support or guidance about where to get information from your consultant?

Well the NHS is never fast 🙁 but they promised me some info like that. Meanwhile I found sites and forums on the computer but most of it is rather American.


 
Posted : 19/03/2019 9:26 pm
 Lynora
(@jabba-the-hut)
Posts: 4259
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I'm in Scotland, so probably not much use, but our local support group shows this link for England:
https://www.mndassociation.org/getting-support/local-support/
also,
https://www.mndassociation.org/


 
Posted : 20/03/2019 5:19 pm
Anne Mary
 Anne Mary
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Posts: 405
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Thank you Jabba, I have just now discovered that site! So much to do at this stage and everything takes so long. Just for a blue badge application "the council will make a decision within 12 weeks" .....


 
Posted : 20/03/2019 8:28 pm
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