On 300mg Thyroxine Still Hypothyroid

Hi - I've been in a similar position with the thyroxine not working. In my case I had both Hashimoto's and a lack of conversion to T3.
The thyroxine (T4), which is not active, has to be converted into the active form T3 by an enzyme. If this does not happen no matter how much T4 you take you will feel no better. I had to hold myself in check when the consultant endocrinologist told me that my "T4 levels were OK so what is the problem?" - I had just handed him a long list of symptoms - I was incensed! so I walked out and went private, but also learned as much as I could about it.
There are 3 possibilities to follow up:
1 Dr Durrant Peatfield specialises in thyroid, has written an excellent book 'The Great thyroid Scandal and How to Survive it' and runs clinics all over the country - see [DLMURL] http://www.thyroiduk.org.uk/tuk/pages/documents/Dr-Peatfiel d's-clinics.pdf[/DLMURL]
He himself has retired but he has other doctors who work for him. The reason why he had problems with the GMC is that he was prescribing thyroid extract which has a mixture of thyroid hormones (not artificial T4)! His patients, however, did extremely well - surprise, surprise ... Complaints were NOT upheld.
2 Dr Georges Mouton, Hale Clinic, Regents Park. He is Belgian, comes over every other week, and specialises in the thyroid/gut connection, lectures worldwide. He has turned my life around - I lost 3.5 stone in about 6 months with little effort, I have more energy and life is worth living again. I have now retrained to do therapies which have helped me, but I could not have managed it without Dr Mouton. See http://www.gmouton.com/
3 Alternatively find another doctor in your area who has a sound knowledge of endocrinology.
Best of luck! It is definitely possible to recover with the right balance of hormones.
Caroline

Hi This is my first posting so I may not have it quite right; my name is Suie and I am a nutritional therapist. I frequently work with people with an underactive thyroid using natural supplements of minerals to increase production of T4 and T3. To make T4 you first of all need iodine, that maybe deficient, and may have caused your hypothyroidism in the first place, but it doesn't explain why the thyroxin isn't working. Following on from what Caroline says: T4 has to be converted to T3 using a specific enzyme; that enzyme requires several minerals to make it work properly. Most chemicals in the body work on a lock and key principle, the trouble is that if the enzyme is short of a mineral it can convert T3 into the wrong shape so that it won't fit and remains inactive. This is called reverse T3. They don't test for reverse T3 in England. You could get a private test done, or you could find somebody who works using Functionmal Biochemistry which is a branch of Aplied Kinesiology. That method would be able to find which specific mineral is deficient, how much you would need, and for how long.

Hi - I've been in a similar position with the thyroxine not working. In my case I had both Hashimoto's and a lack of conversion to T3.
The thyroxine (T4), which is not active, has to be converted into the active form T3 by an enzyme. If this does not happen no matter how much T4 you take you will feel no better. I had to hold myself in check when the consultant endocrinologist told me that my "T4 levels were OK so what is the problem?" - I had just handed him a long list of symptoms - I was incensed! so I walked out and went private, but also learned as much as I could about it.
There are 3 possibilities to follow up:
1 Dr Durrant Peatfield specialises in thyroid, has written an excellent book 'The Great thyroid Scandal and How to Survive it' and runs clinics all over the country - see [DLMURL] http://www.thyroiduk.org.uk/tuk/pages/documents/Dr-Peatfiel d's-clinics.pdf[/DLMURL]
He himself has retired but he has other doctors who work for him. The reason why he had problems with the GMC is that he was prescribing thyroid extract which has a mixture of thyroid hormones (not artificial T4)! His patients, however, did extremely well - surprise, surprise ... Complaints were NOT upheld.
2 Dr Georges Mouton, Hale Clinic, Regents Park. He is Belgian, comes over every other week, and specialises in the thyroid/gut connection, lectures worldwide. He has turned my life around - I lost 3.5 stone in about 6 months with little effort, I have more energy and life is worth living again. I have now retrained to do therapies which have helped me, but I could not have managed it without Dr Mouton. See http://www.gmouton.com/
3 Alternatively find another doctor in your area who has a sound knowledge of endocrinology.
Best of luck! It is definitely possible to recover with the right balance of hormones.
Caroline

Hi Sue and Emma
Felt I'd said enough! but agree with your comments Sue, and Little Fawn's. I too am a Nutritional Therapist, but I felt my personal experience would be more helpful to tell just now.
Be aware that starving oneself lowers the metabolic rate - to 'conserve' what food we do eat - so eat lots of veggies and go for long walks. That'll help a bit right now. A nutritionist or holistic doctor will test for mineral deficiencies - I've never had so many test results in my life as I had from Dr Mouton! - which need rebalancing along with the hormones.
All the best
C

Thanks

Thanks so much for the replies, its a lot to take in, but I will be taking what I can of this when I see my GP wednesday, I think that maybe there is something in the reverse T4, as the thyroxine hasnt worked no matter what the dose has been, I also have had my 3rd child in the past 2 years, I was hypo all through the pregnancy and she is now nearly 2 and has hypotonia, she can not walk or weight bear as yet, it may take months or more likely years, I feel the fact I was hypo when I was carrying her could of been a factor in this. If anyone has anymore advice or any help that would be lovely. Or if anyone has had similar experiences. Emma x

I am planning to see Georges Mouton as well, having had lctures from him. He is, however, very expensive and I believe he likes to do lots of tests but if it makes me better then.......

I will be qualifying in nutrition this June.

Patchouli

I take a natural pig thyroid which has both T4 and T3. I have Hashimoto's. You just have to realize that most doctors are ignorant when it comes to thyroid disease.

There is a lot of information available here
http://www.stopthethyroidmadness.com/

I've been on Thyroxine for over 4 years and it has helped my energy levels but I still suffer from bouts of insomnia - so here I am at 3 in the morning!

I too had to fight with my doctor to get a test. I found Reiki and thyroxine helped.

Be aware, that even with hypothyroid you can experience anxiety which can lead to chest pains, irregular heart beat and insomnia.

I agree with the other comments - to arm yourself with information - a good website is http://www.patient.co.uk .

Keep taking your prescribed medicine as stopping it is not advised.
Have faith in your ability to cope.

Keep taking your prescribed medicine as stopping it is not advised.

I really have to disagree here. Not everyone who is on synthetic thyroxine gains benefit from it.

For some, synthetic thyroxine does not appear to taken up at cellular level. Blood levels appear normal but there is absolutely no relief from symptoms whatsoever.

I am no different either on synthetic thyroxine nor off it. I only respond to porcine (pig) glandulars which the NHS do not prescribe (although this was the standard treatment prior to synthetic thyroxine.

People with hypothyroidism are not being given the choice of treatment by the NHS and are resorting to private care such as Georges Mouton, Dr Barry Durrant Peatfield, Dr Skinner, Myhill and others like them.

I would suggest that people check the website:

http://www.thyroiduk.org/

The care of hypothyroidism is exceptionally poor in the NHS. This organisation is fighting against that.

Patchouli

I agree Patchouli - I had no joy from NHS treatment and it's hard not to be angry that their lack of proper treatment has cost me my career, and some 12 years of my life. However the establishment are in total denial that artificial thyroxine has any problems associated with it! Also the warning signs of hypothyroidism - fibromyalgia - are not recognised either. :banghead:
Looking back I think I have probably been hypothyroid for 25 years, gradually getting worse until I saw Dr Mouton.
Thank goodness I am now more or less sorted and can get on with life again, but no thanks to the NHS. 😀
Caroline

dr george mouton

:)hello evryone i have just joined and read with interest all your comments on dr george moutonwho iam going to see. after being a 'deadperson' for many years now thanks to the endocrinolgists who do not seem to know enough , iam now back to the credit card , but it will be worth it if Dr. goerge puts me right. It was good reading your posts, i have had the most awful 9 months of my life with symptons of adrenal/thyroid/ gut/ gluten hormone inbalance/nausea/ faintng/ etc . cant wait to see george. xx:)

Hi Curtains and welcome to healthypages,

Do let us know how you get on. Although this thread was started a couple of years ago, throid problems are still something that are ambiguously understood by doctors. Just looking at the comparative ranges used between the UK and USA for determining if someone has e.g. an underactive thryoid or not, shows a vast difference in understanding. If I myself were to just be taken on UK levels, I would be considered to not have an issue, but by USA measurements I would have an underactive thryoid. Fortunately, I persisted with my doctor and she has tried me on a low (childs) dose of thyroxine and that has helped with some of my symptoms (including resolving my 'incurable' (as the eye specialist consultant put it) case of blepharitis aka watering eyes caused by skin cells from the eyelids blocking the tear duct). Sometimes you just have to do your own research and be persistent discussing it with your doctor, putting 'evidence' in front of them to show you know what you're talking about and you're not just clutching at straws. 😉

All Love and Reiki Hugs

:)hello evryone i have just joined and read with interest all your comments on dr george moutonwho iam going to see. after being a 'deadperson' for many years now thanks to the endocrinolgists who do not seem to know enough , iam now back to the credit card , but it will be worth it if Dr. goerge puts me right. It was good reading your posts, i have had the most awful 9 months of my life with symptons of adrenal/thyroid/ gut/ gluten hormone inbalance/nausea/ faintng/ etc . cant wait to see george. xx:)

Hi Curtains - welcome to HP

Delighted to hear you will be seeing Dr Georges Mouton - he's brilliant and if anybody can get to the bottom of it then he can - not cheap though! I shall be seeing him next week for my 6-monthly check-up. When are you going to see him?

I have not changed my mind in any way about NHS treatment of thyroid problems and I am still furious that they were totally oblivious of my problems and nothing seems to have changed elsewhere.

dr george mouton

hello giles and caroline thankyou for replying, i am going to see dr george wed 11 may. next week! i dont know what to expect so if anyone can enlighten me that would be great. does he treat with armour? natural progesterone etc?.. interestingly my eyes water constantley, whether i am indoors or out, i have had drops and the needle down the tear duct but it was clear so i reckoned it was hormones? has any one had symptons of adrenaline rushes thru your body at night with sensations like electricity an dnerves going haywire, i had this for months on end and the feeling was sheer torture an di have a high pain threshold but all the nerves and muscles in my limbs were twitching and throbbing, nausea , lost a stone in weight was wweak and shaky in the mornings, i learnt on various sites that low cortisol equals low blood sugar low bp, mine drops between 8 and 10 mm,but my endo has taken no notice when mine dropped 8 mm, most sites say 10mm, so does it really have to be by the book and drop 10? i have had to do so much research and consequently taking my findings and saliva tests ( showing hypo adrenal function) to endos and gps and a neuroendo proff in london has constituted me to be told i need to see a shrink! all that is wrong me me is hormones and poss gluten intolerant i am deffo not mental altho i certainly do feel it at times, its so frustrating when you know you have all these symptons and are fobbedof and altho this thread was started a couple of years ago i found it while searching out my symptons, i can honestly say that after having a very traumatic stressful life for 30 years that my adrenals must be debunked, we produce high cortisol at first but afet years of unrelenting stress we then produce less cortisol why dont docs realise this , we need thyroid and hormones to keep us alive what do they do a medschool becos if we can research (like we have to) why cant they look up stuff on sites, we are supposed to take responsibility for our own health and when we do its condenmed just like we are with the nhs. unless we fit in with the 'text' book then our symptons do not exsist. i only hope that dr george can get to th e bottom of this for me as i have had these 'crashes since 2006 and they are really really awful. i think i have been hypo adrenals/thyroid for years really an dnow my bod has had enough. its so good to talk to you guys in here take care pauline:) xx

dr george

hi i forgot to ask, i have lost most of my hair thru this awful illness has anyone regained theirs after seeing dr george? thanks. i am not good at navigating around and i saw a right hand column depicting 'friends' how do i do this? thanks guys. pauline:)