Personally speaking I find with Fibromyalgia, I see someone said ME is fatigue and this is pain based but I have both. Im in a lot of pain but Im also knackered all the time. The best way I have to explain it is this. Im in pain all the time. Sometimes not so much pain sometimes a lot more pain but always..... pain.. and tiredness... coupled with clumsey, lack of sleep and some depression I tend not to admit too....
paula
xxx
bless you paula, i know the feeling, it really annoys me they call M.E cronic fatigue syndrom!! i wish that was all it was.. good news is M.E does eventually go..
massagembs
I went to the GP (a new one) regarding my fibromyalgia (not diagnosed) and other related symptoms: always tired, sore muscles, tinnitus, poor sleep, brain fog etc. It was such a shambles he said "Well I dont like to give these things a label" and "What you are describing, most of the general population have". What rubbish! He also mentioned psychosomatic pains! and went on a rant about exercise etc and said "What else do you do apart from being a mum"! This guy has no listening skills. I was going to ask him about MS as it is in the family and I have the symptoms, but I decided not to. The ironic things is I am a holistic therapist: massage, aromatherapy, reflexology etc and a counsellor-so I am fairly clued up. All I needed that day was him to acknowledge my reality, my experience and say we could look into things...
I went to doctors for years and was told everything form I had growing pains to it was in my head before I found a doctor to diagnose me with fibromyalgia. then I moved house and had to change docs to be told by the new one (and Ill NEVER forget).... " fibromyalgia is a bandwagon for lazy doctors to jump onand hand out painkillers without sourcing the problem" to be honest its part of what got me into holistics in the first place as I had to find something to help me.
good luck
Paulaxxx
Hi Paula and everyone
Yes ME/CFS and FM are awful for those living with it - I have both but am much improved now thank goodness. I know I have said it before, to my mind [url]Dr Sarah Myhill (lots[/url] to read here) has the best information available - apart from the illness specific websites. Her information is based on biochemistry and she explains the whys and wherefores of the problem of why the body starts to shut down - the degree to which one has the problem is often the result of how long the person has battled to keep going through the illness, unless it is the result of viral attack (PVFS) involving the mitochondria - the power-generating units inside cells. Often those with the worst problems are those who strive most in their lives and it becomes very frustrating and depressing when one is obviously going backwards! It is vital to learn to pace oneself to avoid energy depletion - otherwise it can take even weeks to recover one's energy - [url]well explained[/url] by Dr Myhill.
Other than Dr Myhill, those doctors who might be helpful are the ones who practice Functional Medicine, like [url]Dr Georges Mouton[/url]. FM doctors seem few and far between unfortunately - and all have to practice privately because the NHS doesn't recognise their format, even though it is based on the body's biochemistry! Other practitioners include Nutritional Therapists, Naturopaths, and help can be obtained from acupuncturists, homeopaths, etc.
As everyone is individual, there is no universal cure, but following Dr Myhill's format seems to get results - and the sooner it is dealt with the better - things tend to deteriorate further with time. Food intolerances certainly seems to have a hand in many people's situation.
Unfortunately there was an article published in the early 1980s in which the doctor concerned stated ME/CFS was a psycological problem (yuppie 'flu) which has done enormous damage to the understanding and treatment of these illnesses. I have just seen a client who was told by her GP that she is too old to have ME!!! There is enormous misunderstanding out there and one just has to keep at it to find a doctor who has some understanding of what we are going through.
There is a little light at the end of the tunnel in that NICE has stated recently that ME can be as serious as MS - but it hasn't made much difference so far!
Pain relief
hi
I must tell you that if you have pain disorders in your body then making use of Osteopathy recognize that much of the pain and disability we bear stems from abnormalities in our body’s structure and function. Osteopaths identify and treat problems with muscles, ligaments, nerves and joints to help the body’s natural healing ability.
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[url]osteopathic clinic Brisbane[/url]
Metals and chemical, foods and toxins
Please consider the work by Adrew Cutler, research scientist who wrote the book Amalgam illnes, web search, anything. Just do it.
Sorry to be so blunt but the subject is too complex to be explained on this web site, so if anyone is in need of answers, here is a good starting point.
Pete/
A
Metals and chemical, foods and toxins
Please consider the work by Adrew Cutler, research scientist who wrote the book Amalgam illnes, web search, anything. Just do it.
Sorry to be so blunt but the subject is too complex to be explained on this web site, so if anyone is in need of answers, here is a good starting point.
Pete/
Agree, the subject is too complex.
In my job in such cases I prefer model of roger woodruf ....
It usually works well if patient wants to be helped and understand this approach (I usually explain details , as will all therapies and methods I use, kinda education for patients and this gives them clarity and more understanding)