Post Viral Fatigue

Please Help 🙂

Hey There 😮

I've only just joined and I'm hoping for some help if possiable... Ive just been diagnosed with M.E / Fibro / Post viral stress... I'm not sure if the docs are just calling it this as they are unable to detect whats actually going wrong...

I first got ill aout 3 years ago I collapsed whilst out and i was unable to speak or say what was wrong and had a weird pain in my head as if my brian was shaking. My parents fetched me and rand nhs they told them to monotor me.. I was fine for about 6 months and then it happened again. This time tho I los my vision for about a minute and i couldn't get up of the floor.. whist crawling to get help it seamed as if everything was getting furter and further away... After about 10/15 minutes I was back to normal but my head still felt weird!!

Everything was fine againuntill about about 2 years ago i started getting flushes all the time and dizzy spells whilst working. After about 2 months of that i started to feel anxious as if something terriable was going to happen id have shooting pains in my head all the time and got really tired... Working in a school with 5 yearolds wore me out so the docs put me on the sick.

18 months ago was when I got really ill. My tounge would tremble. My vision and eyes would shake my muscle trembled all over my body. I felt sick.. hardly ate but drank way too much!. I had what i can only call *Brain shakes* as if the brain was hitting the walls of my skull It was awful!!.. I slept all the time. My temp was thro the roof.. resulting in me making 14 trips to A&E within a month. They kept saying it was sinuses and a virus and to keep drinking and take antibiotocs for a week follwed by paracetamol will i felt better. This lasted about 2 months...

I started to feel better and signed myself off the sick and went to work.. I however only lasted 2 days as i was so tired. I am still on the sick now 2 years later. I have had a few bloods taken and they all come back normal!!! I have no idea how!! I have also had a ct and mri scan and that was clear..

I still feel so ill.. I get trembles all over my body. My tounge shakes. My eyes flicker. I cant go outside withought sun glasses. I do not put the lights on to watch tele or my eyes hurt. I seel sick alot. I alway have a bad belly. I "burp" about a thousand times a day. I have buzzing sounds thro my years. I get alot of headaches as if my heads in a vice or someones pushing down on my head. I have water blisters all over my hands. i feel generally un well. I have become allergic to every single tablet / anti biotic.. I get bad flushes and vertigo. I see rain spots sometimes. I havent left the house for 3 months now as im too nervous!! PLEASE HELP xx

Hi there Hotbrush - welcome to HP.

It sounds like you have an awful lot to cope with - not nice :eek:. There is no way I can offer a solution to something so complex, but I have a couple of suggestions.

There are two medical doctors who may be able to help - firstly Dr Georges Mouton, [DLMURL="http://www.haleclinic.com/therapist/dr-georges-mouton"]see here[/DLMURL], or nearer to home for you, Dr Sarah Myhill, see here, and here. Both doctors have done extensive research into biochemical imbalances and may be able to offer some help.

Travel and costs may be an issue with Dr Mouton - but he is very good indeed. Dr Myhill will also be most helpful and would refer you on to anyone she thought it appropriate. She specialises in CFS/ME/PVFS and has had results when others have given up. Unfortunately the NHS tests don't cover the imbalances present in these health problems

I wish you well on your path to enquiry about your illness and finding a cure.

Love and Light

hey there,

i have had pvf on and off my entire life but i think it has been getting worse over the last 6 months, a variety of random symptoms that have culminated with 6 weeks illness and no improvement. I have found that being blood tested for mineral deficiencies and then taking supplements really helps, although it does always reurn for me i do get back to 100% in 6 months or so then it is 9 months until i go down again.

i really recommend this and hope it helps someone

Pvf/cfs

Hello all
I do recommend that sufferers see a qualified homeopath. S/he will be able to help not only with the changing symptom patterns but also on a holistic, constituional level to get the immune system back on par. Homeopathic treatment should help the condition lose its hold and ensure that once banished, it does not return,
For more info, you are welcome to contact me. I am registered with the Alliance of Registered Homeopaths and based in Nottingham.
All the very best
Sue

Hey There 😮

I've only just joined and I'm hoping for some help if possiable... Ive just been diagnosed with M.E / Fibro / Post viral stress... I'm not sure if the docs are just calling it this as they are unable to detect whats actually going wrong...

Do some research on dysautonomia - another 'general' diagnosis (and no simple cure) but I wonder if you might find that your cluster of symptoms matches those typical of dysautonomia, which could give you more clues about how to deal with the daily challenges. Passing out and falling over are frequently reported, as is a heightened state of anxiety.

Hi, I have had it for over 16 years - I will spare a list of details as you are probably too tired to read them anyway! Tried EVERYTHING! The only things that helped at all were reflexology BIG TIME and changing nutrition with the help of a skilled therapist from the Institute of Optimum Nutrition.
Finally after seeing an endocrinologist about my 12 year long thyroid condition he was amazed that I had never been referred to the Chronic Fatigue Clinic at Kings Hospital in London and immediately wrote the letter for me. I went there for 2 and a half years and it was absolutely brilliant.
I had been completely against pyschiatrists with good reason, and thought graded exercise was just plain stupid.
However, the way I was looked after there was so kind and compassionate and they really really helped me to arrange my life in a different way which has made a massive difference and I have a fairly ok quality of life. She said that as I had been ill for so long before they got to me I would never be recovered, but that they could hugely improve my quality of life and my energy levels - they were right.
Ask for a referral. Keep an open mind. Get past the first interview which is with the pysch team for some weird reason but nothing sinister and then embrace the programme. You are never pushed to do something you aren't comfortable with, just supported and offered help along the recovery road.
Good luck
Love Melanie x

Interesting thread with some good posts; I hope all of you are making progress. Patience is key, I find. Patience and very healthy, stress-minimal living.

Going mad with fatigue

Im a 29 year old female from Australia and after having been sick I'm now suffering from really bad fatigue.

For the last eight years I've been suffering from really bad sinus infections (most were viruses). Waking up feeling stuffed in the head, tired and cranky became something I became used too. I managed to work 2 jobs whilst going to university full time and doing unpaid work as an intern at a movie studio. I was working an almost 80 hour week.

This ended 9 months ago. University finished but I kept getting sicker and sicker. I was managing with one part time job and was doing ok until 4 weeks ago. My normal doctor was away so I went to a different clinic. The doctor there was pretty awful. I have been suffering from chronic sinus infections for 9 months and all he did was say it was hay ever. When I argued with him he relunctantly gave me a script for antibiotics and literally kicked me out.

The infection didn't go away. I was coughing constantly and I knew thus was not normal as I had recovered fast previously.

Last week I woke up with extreme pains in my legs, back, shoulders and neck and almost a splitting migraine around my temples and my face. I struggled for 2 days before going to doctors. I had a temp bordering on 104. I went home with strict instructions and 4 hours later had to be rushed to hospital after throwing up for 5 hours.

Doctors at hospital said it was an extremely severe bacterial infection in my sinus. They drained my sinus and put me on like 7 medications. It's been 3 days since I've left hospital but I still feel extremely fatigued. If I walk around more then 5 minutes I either feel like I'm going to pass out or I just feel really really sick. I go to bed early and wake up reasonably early but I still feel exhausted. Yesterday I accidently dropped a tablet on the floor and picked it up. I had to sit down on the nearest chair after that and I trembled for about 15mins before I was ok to move.

My sinuses are clear for the first time in 8 years but this is tampered by this constant tiredness. I've been in hospital before for a week with pneumonia so I know recovery can take awhile and I'm patient but even then I was able to move around quite on without feeling like I was going to pass out.

Im eating plenty of vegetables and keeping hydrated. I notice if I drink the electrolyte drink the doctors have me I feel almost normal for about half an hour and then I'm back to feeling exhausted. The black circles under my eyes are getting blacker each day and it's just frustrating as I never knew having a fever could cause this much havoc.

I'm seeing a doctor tomorrow but maybe I need to have mineral supplements too?

I'm going crazy feeling like a normal 29 year old with the body that's like a trembling leaf!

Hi there and welcome to Healthypages :wave:

You certainly seem to be struggling! It's not nice feeling so ill. I think you need to listen to your body - it is telling you to rest just at the moment. You are not the only one who has been there. There certainly seems to be a whole lot going on with you though. A look at information [url]like this[/url] could put you back on track.

There are a number of things you can do to help yourself.

Firstly may I suggest you have been overdoing it by working such long hours (even if you felt it was necessary!) and overwork can result in [url]adrenal exhaustion[/url]. This needs sorting out by a professional (the Dr if s/he is amenable) or a holistic doctor) - it will mean blood tests and hormone support programme until you are firmly on your feet. So when the doctor comes, ask if this can be tested for.

Secondly you are likely to need the support of a full range vitamin and mineral protocol. I would suggest quality products - not those off the chemist's shelf. For this a Nutritional therapist or holistic therapist will be able to suggest what is necessary after a full assessment. Certainly high dose B vitamins and a regular intake of vitamin C 1000mg and zinc (3 x a day) to help support the immune system. Your general practitioner doctor is unlikely to be able to advise you on these as they aren't taught (at least not in UK) about using extra vitamins and minerals therapeutically, only the (minimum) recommended daily amounts.

Thirdly, I'd get yourself tested for food intolerances - intolerance to milk and milk products for example, can predispose one to sinus problems.

If you can get someone to help you at all while you are so unwell then that will help. If you can get them to make you freshly prepared smoothies and or juices so much the better. They must be consumed within half an hour of them being made to get the full benefit otherwise you start to lose the essential enzymes and they start to break down. The nutrients in the [url]smoothies and juices[/url] are much more available than if the food is cooked or just chewed, and should be on top of not instead of your general diet.

Hope you start to feel better soon - and keep us posted!

post viral fatigue in just one kind of side-effect, It's due some blood reaction in our cells,
so by this conditions, Consultant with Doctor, Take some new therapy.

hi
I am currently 40 weeks into a regime 48 weeks for viral blood disorder commonly known Hepititas C.The treatment is combination of anti viral tablets and a weekly injection of interferon to help my immune system. The systems for any type of viral infection are basically the same. Flu type symptoms in varying severity . The breathless feeling you having could be from the most serous types of infection can cause anemia also your heamaglobin levels can drop causing dizziness and a feeling nausea but not being.sick.My nurse has said that the factor in how long you feel symptoms from a viral infection can be down to your immune system and the type of viral infection. I hope this is helpful.If I can offer any further support or advice please ask.

Hi all,

After reading many post, felt like I should share my story.

Instead of being diagnosed with glandular fever, I was diagnosed with Influenza B first in late August, term three of year 10. I had viraginous blood tests, two nasel scraping and one throat swop. It wasn't till the second nasel scraping that I was told that I had influenza B. I took 3 weeks out of school and I was on my way to a full happy and cheerful recovery :). After about one month recovery I was back to school for term 4. I went back for three weeks and the suddenly fell ill again. I was feeling unbearably tired and exhausting, couldn't not get out of bed, runny noise, sore and dry throat. I would pretty much just lie on my bed with my laptop on its side watching the seasons of Suits. Great show by the way. After even more bloods nothing came up. One day we decided to do another on and by lucky it came up positive with glandular fever. I had to take the rest of term 4 off. After 6 months recovery I was getting better but I was at the most annoying part (in my opinion) where I was better but I was in that state where I didn't feel right. I decided to pull out of the sport I was playing . After more blood tests, the result came back with everything being perfectly normal.

I took the plunge and went back to school to start year 11. After three days of school I started to feel really tired again. This time my spleen and liver had been enlarged to a concerning size. The doctor started testing for other things and still nothing. I was then referred to a paediatrician as I am 15. The paediatrician order me to get some x-rays, two ultra-sounds and an MRI. Yet again everything was normal except one ultra-sound where my glands were huge! There are looking a the chance of Lymphoma, some parasite or if it just Post Viral Fatigue. My bet is that its just PVF.

At the moment I am still ill and have had 7 month recovery and haven't been back to school as you might be able to tell of many grammatical errors and the lack of sophistication of my writing.

As from today I am starting to gain more energy and I was wondering if anyone had even suggestion/tips/tricks that might help. For example, I heard vitamin B is good to take during a time like this.

On another side note I would like to ask for your opinion on with you would choose.

I am in this situation where I have to decide I am going to do with school as I cannot pay the term fees and not go to school. The following choices are:

One is to drop out of year 11 for the year and then come back when I am ready and repeat year.

The second one is to drop out of school and just go to TAFE and finish year 11 and 12 there in 6 months. If I did TAFE I still receive a school leaving certificate One reason this one would be good is because once I recover I would be able to take my sport to the next level. One reason I wouldn't want to do this one is that fact that I would barely see my friends and I would start to loose the strength of the relationship that I have with them.

The third choice is continue on with school and go on to term 2. One of the reason I would want to continue on is that I am able to be with my friends, being able to walk to the library with them and study, to be with my grade, to be with people me age.

I have moved a bit. I once lived in New Zealand and then moved to Australia. We lived in one part of Australia and then moved to another due to our sport. For me making new friends was hard because of the differences so for me to repeat year 11 for people I don't know and how already have there groups is a hard thing so I am not really keen on doing it.

I want your honest opinion.

Thanks for ready 😀

Hi, new to the forums. I'm hoping for some advice.

My symptoms started 6 weeks ago tomorrow, I woke up feeling dizzy and a general unwell feeling. This went on for a few days so I went to GP, he said I had a slight fever, blood pressure/heart rate was normal. He said it was most likely viral and these things sort themselves out within 1-2 weeks.

2 weeks passed and I was still the same, dizzy from waking up, maybe dizzy is the wrong word more a spaced out, detached type feeling. I also had pains on and off in the tops of my arms, back and chest, sometimes stabbing pains but mostly aches. And the general unwell feeling remained, like nervousness, butterflies that kind of thing, and slight nausea although I haven't actually been sick.

I went back to GP after about 3 weeks, this time they did blood tests and a chest x-ray, all came back fine. They did ESR that was fine also.

Now doctor says Post Viral Fatigue, he said a slow gradual recovery taking 2-3 months.

The thing I dont understand though is I can't seperate where the virus stopped and the PFS started, the symptoms have seemed the same throughout. Has anyone any experience of this. My body does feel quite tired, but i'm not tired in the sense of I could sleep all day.

Luckily i'm managing to keep up with work, but not feeling up to anything socially.

Is there anything else it could be or do I just need to wait it out 2-3 months?

Any advice appreciated.

Ben

Next time you visit your doctor, you could ask them if, a vertebral artery test is necessary. Its simple and quick.

One answer - Sauna

Sauna the heck out of yourself

Last year I got poisoned at work with toxic paint fumes. I had severe chemical bronchitis for 5 full weeks. It was sheer hell.

I researched and came across a sauna protocol using niacin & vitamins to remove the toxic load from the body. At this point I was coughing badly (deep whooping cough) 3-4 hours every night & the phlegm was far worse than flu

I set about to detoxify my body & save my life. I sauna'd for 2-3 hours per day. After 20 hours the coughing subsided. After a 60 hours much of the illness was gone.

I did 100 hours in 2 months for as close to 100% recovery as I could get.

OK now that did damage my bronchi - that was the whole problem & these things take time to fully heal. So when flu season came this year I got hit hard.

I had swine flu for 4 weeks - awful normally I beat the flu in 1-2 weeks

Now I am about to under take the heavy sauna again although I am 95% well again I can tell there is some lingering fatigue & occasional cough.

Now I know how to get rid of it. 2-3 hours sauna per day until its gone. With drinking at least 5-6 litre of water in there & come out for a quick cold shower every 15 minutes or so.