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non-hodgkins lyphoma

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(@smoothie)
Posts: 32
Eminent Member
Topic starter
 

My brother has non-hodgkins lymphoma. He had chemo with stem cell transplant and had several months feeling reasonably well. However the tumour returned and he had more chemo. He had a scan and was told that the chemo had not touched it! So now they have recommended a course of chemo that has been, apparently, fairly successful with Burkitts Lymphoma. The family are relying on me to come up with some natural remedy ideas for him since that is where my interest lies. For weeks I have studied the net and all I find is conflicing ideas. I obviously dont want to suggest something for him that will do more harm than good. Can anyone please give me some help with this.


 
Posted : 23/09/2006 1:17 pm
(@angelfish)
Posts: 615
Prominent Member
 

RE: non-hodgkins lyphoma

Hi Smoothie,

I just wanted to say how sorry I am to hear your news. I do know how this illness can affect families, so I'm here if you ever just need someone to talk to.

On the natural remedy side, I can't say I have come across anything specifically. I have used aromatherapy treatments and massage, but this must be done with caution and may not be suitable for everyone depending on the stage of their cancer.

Angelfish [sm=hug.gif]


 
Posted : 23/09/2006 5:49 pm
(@whitedragon)
Posts: 391
Reputable Member
 

RE: non-hodgkins lyphoma

Hi Smoothie

I'm so sorry to hear about your brother. I have also had experience of this illness with my Dad and felt so powerless. All i could do was stay with him and be company for him which i know he appreciated. I now do Reiki on my neighbour who has a form of bone cancer. She checked with her doctor and he said it would be fine. I don't know if you know much about Reiki but it's a very gentle form of energy healing and can be of great benefit to cancer sufferers. I personally don't feel that Reiki would ever make the illness worse but your brother ought to ask his doctor if he wants to give it a try, just incase they disagree. My thoughts are with you and your family,
Hannah xx


 
Posted : 23/09/2006 6:04 pm
(@smoothie)
Posts: 32
Eminent Member
Topic starter
 

RE: non-hodgkins lyphoma

Thank you both for your replies. I am looking into Reiki as an option for him to try but unfortunately he is not as open to ideas as I am. I mentioned to him that maybe taking some Vitamin C and a few other nutrients might be a good idea to build up his immune system a bit and he hasnt even tried that yet. Your replies made me feel alot better though so thanks alot for listening.
Smoothie x


 
Posted : 25/09/2006 9:27 pm
(@whitedragon)
Posts: 391
Reputable Member
 

RE: non-hodgkins lyphoma

Hi Smoothie

I think echinacea can be used for building up the immune system but again, he needs to check with his doctor incase it conflicts with his current medication. I do hope some of this helps and people on this site are so supportive if you're feeling down. It's probably affecting you and the rest of your family nearly as much as it's affecting him and i really feel for you all.

Love
Hannah xx


 
Posted : 25/09/2006 10:07 pm
solas
(@solas)
Posts: 390
Honorable Member
 

RE: non-hodgkins lyphoma

There are times you can never be a prophet in your own land and health advice is a case in point. By that I mean family will always listen to a stranger to take advice no matter how well meaning we are. Let your dad know what success you have had with complementary therapies and suggest he sees a Naturopath.
All the best


 
Posted : 26/09/2006 7:15 am
(@selenite)
Posts: 88
Estimable Member
 

RE: non-hodgkins lyphoma

Hi Smoothie,

I have NHL and am about to start chemo (R-CHOP). I take a natural Chinese medication recommended by a herbalist I 'met' through this forum.

I'm not sure about advertising so if you're interested, I can put you in touch with this herbalist as well as the medication.

I am also a Reiki Master and use Reiki everyday - it certainly calms the Spirit and helps with grounding.

Love and Light
Lyndsey


 
Posted : 11/10/2006 5:23 pm
(@smoothie)
Posts: 32
Eminent Member
Topic starter
 

RE: non-hodgkins lyphoma

Thank you all for your replies, it certainly helps alot. I am going to see my brother today so I will mention what you suggest Selenite and see what he says. Again thank you all so much. x


 
Posted : 19/10/2006 11:51 am
(@michael-price6)
Posts: 310
Reputable Member
 

RE: non-hodgkins lyphoma

hello smoothie, i have to say it must be a very difficult time for you. vitamin c was the start of my interest in alternative health, and i know there has been lots of reports about its uses, some good, and some bad, i can only report on my own experiences. My two boys when aged between 3-5 years used to come down with the usual viruses, temperature, vomiting, coughs and colds, on one occasion i wondered if perhaps high dose vitamin c may help, i took a chance and gave him a massive 1000mg/1gram of vitamin c, bearing in mind the rda in the uk is just 60mg per day. To my amazement within 30 mins of taking this his temperature was normal, and he was running around as if nothing was wrong. This proved to be the case time and time again. However i thought that this was very good, at a later stage i wondered if i was doing the right thing, by preventing them from getting the virus, would they get it later in some other form? i dont know. they dont appear to have.we all take now 500mg per day of vitamin c 833% the rda, and have done for some years, and i think it has helped the immune system.

in your case all i can say is ask your gp what he thinks. my own opinion is it wont do any harm, and with any luck will help

good luck and kind regards mike


 
Posted : 19/10/2006 2:20 pm
(@garthur)
Posts: 506
Honorable Member
 

RE: non-hodgkins lyphoma

Smoothie, I'm thinking of you and sending Reiki.

I know what Solas means about not being a prophet in your own land, too!

Lyndsay, I'm also thinking of you.
XX


 
Posted : 19/10/2006 10:52 pm
(@goldilocks)
Posts: 138
Estimable Member
 

RE: non-hodgkins lyphoma

Hi
im so sorry to hear of your troubles , this is a very emotional time for you all.
Im a nurse and specialise in stem cell collection and transplantation.
I also am an aromatherapist and practice reiki, i agree with the suggestions regarding the reiki but am cautious of using aromatherapy on your brother if he is undergoing chemo as many of the oils can cause a chemo crisis.
There are many new chemo cocktails and would always discuss any other form of treatment with his oncologist first .
Most of them will be quite open to other forms of treatment and relaxation but dependant on timing ie they must first see results from the current treatment to determine its efficiency and cannot do that if other forms of treatments are ongoing at the same time .
As far as boosting his immune system i agree with the above suggestions and would also suggest xango juice , green tea is also a powerfull antioxidant but if taken in capsule form then run this past his oncologist .
I work with 2 very highly respected oncologists and an immunologist and one of them is very against green tea while the others are all for it s use .
There is a place for both orthodox and complementary treatments in your brothers case and others like himwhich is why i practice both.
We have come a long way in the treatments of NHL and cancers especially with stem cells and new chemo regimes.
I hope this helps and if i can do anything else please let me know ,
love n hugs
Lynn xxx


 
Posted : 20/10/2006 12:03 am
(@smoothie)
Posts: 32
Eminent Member
Topic starter
 

RE: non-hodgkins lyphoma

Once again I cant thank you all enough for your replies. Unfortunately my brother has now received several different types of chemo but none of them seem to have helped at all. They have told him that its a very aggresive type he has and that they cant do anything else to help him. Its so sad that just a few weeks ago he was putting all his trust in his dr and now he's asking me to help him with alternative suggestions and is willing to try anything. I took him vitamin C and loads of other thingsout of desperation really and it did cheer him up. But now I am feeling awful for maybe raising his hopes. I would have liked him to have seen a specialist in his type of cancer but he put all his hopes in the one he had and didnt have the chance even for a second opinion. I have been reading about B17 but think I am just getting desperate now. I think I will mention the green tea though so thanks for that. Any more suggestions will be very gratefully received. x


 
Posted : 20/10/2006 1:53 pm
(@goldilocks)
Posts: 138
Estimable Member
 

RE: non-hodgkins lyphoma

Im so very sorry to hear that , you must be devastated and i do really understand how you feel .
When i was 24 someone very very dear to me was diagnosed with a teratoma again very aggresive and at that time stem cells were not even considered .
He was told the same thing as your brother !!
maybe thats why i went into the field im in now ..... to try and help others like him and myself i suppose as i felt totally helpless and powerless to do or suggest anything at the time.
Life is very precious .
A friend of mine is an oncology specialist nurse and he says more than any treatments a positive mind and outlook and visualising destroying the cancer cells invading your body has done more for his patients than many of the treatments , i know you said your brother was a little dubious of some complementary treatments but maybe now is the time for him to consider fighting this with there help, boosting his immune system , eating healthily and getting relaxing treatments and staying positive .There are many organisations around and others in the same situation that can help both him , yourself and your family through this ,
Stay strong and im sure many others here will be sending love and healing prayers to you all ,
Love n hugs ,
Lynn xxxxxxxxxx
[sm=grouphug.gif][sm=grouphug.gif][sm=1kis.gif]


 
Posted : 20/10/2006 5:26 pm
(@smoothie)
Posts: 32
Eminent Member
Topic starter
 

RE: non-hodgkins lyphoma

Many thanks again. It was so upsetting when he finally said to me that he is now willing to try anything. What a shame that natural remedies are often left as a last resort when the docters have finished with you. He had the stem cell treatment which didnt help him. The last treatment he had was something that they hadnt tried on his type of NHL before, apparently they have had good results with it for Burkitts. He didnt continue with that though as they said it wasnt touching it at all. On Monday he has the chance to go in and have Rituximab in the hope that it'll give him a little more time. I was wondering, Lynn, if you could tell me if this is likely to help when given without chemo? He wants to know what I think and I really dont know what to say. He is now taking Vit C, green tea extract and a load of other things that I hope will build up his immune system. At least its giving him hope and today he does seem more cheerful.


 
Posted : 21/10/2006 3:46 pm
(@michael-price6)
Posts: 310
Reputable Member
 

RE: non-hodgkins lyphoma

hello smoothie, i just found this post regarding vitamin c in latest health news-- just thought it may interest you

In addition to the long-known benefit of scurvy prevention, current research associates increased intake of vitamin C with a variety of other positive effects on health, including decreased risks of cancer, cataracts, and cardiovascular disease. Most likely, these benefits are related to the vitamin’s antioxidant capabilities. The current recommended daily allowance (RDA) of 60 milligrams of vitamin C per day is based on the minimum amount needed to prevent scurvy, but may not be sufficient to protect against other diseases. To reevaluate the RDA for vitamin C, two researchers reviewed the biochemical, clinical and epidemiological research into the role of vitamin C in disease prevention. Based on data from 238 studies, these reviewers concluded that an increased vitamin C intake is necessary to help prevent diseases besides scurvy, resulting in a new RDA value approximately two times greater than the present one. The article presents an excellent overview of the antioxidant capabilities of vitamin C, particularly its function in humans.

kind regards mike


 
Posted : 21/10/2006 8:47 pm
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